Most orphan drug related news are at:

eurordis.org – EURORDIS - The Voice of Rare Disease Patients in Europe

19th Workshop, Barcelona: "Practical aspects of progressive patient access to OMPs, post-marketing evidence generation and related pricing questions" 19 Aug 2013 | 07:50 pm

date_published: October 2013 19th Workshop of the EURORDIS Round Table of Companies - October 15th, 2013 (9.00 to 16.00) "Practical aspects of progressive patient access to OMPs, post-marketing ev....

petition test 19 Aug 2013 | 02:51 pm

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More orphan drug related news:

CureFAKtor Pharmaceuticals Receives Orphan Drug Designation ngpharma.com 19 Jan 2011 | 11:27 pm

CureFAKtor Pharmaceuticals, LLC, a privately-held biopharmaceutical company focused on the research and development of Focal Adhesion Kinase (FAK) inhibitors for cancer, today announced that its lead ...

Albireo Receives Orphan Drug Designation for its Severe Liver Diseases treatment europe-health-care.eu 24 Jul 2012 | 03:23 pm

Albireo AB, a Swedish biopharmaceutical company, today announced that the European Medicines Agency Committee for Orphan Medicinal Products (COMP) has issued a positive opinion on an application for o...

UniQure’s gene therapy for lipoprotein lipase deficiency recommended for approval as Orphan Drug europe-health-care.eu 20 Jul 2012 | 07:54 pm

uniQure announced today that the European Medicines Agency’s (EMA)  Committee for Medicinal Products for Human Use (CHMP) has issued a positive opinion that recommends marketing authorization of Glybe...

Emmaus receives Orphan Drug designation for Sickle Cell treatment europe-health-care.eu 20 Jul 2012 | 03:34 am

Emmaus Medical, Inc., a subsidiary of Emmaus Life Sciences, Inc., announced on Tuesday 17 July  that the European Commission (EC) has granted Orphan Medicinal Product designation for the company’s inv...

Rare diseases part 1: posing questions that are difficult to answer pharmaphorum.com 1 Aug 2012 | 10:07 pm

Starting off our rare diseases focus month, Neil Dickinson discusses the impact of orphan drug development, looking at legislation changes and his own personal experiences. The pharmaceutical industr...

“Orphan” Drugs to the Rescue wallstreet.rukeyser.com 13 Aug 2012 | 12:00 pm

Pharmaceuticals find profits in rare diseases. Read More

Zynismus in der Orphan Drug Debatte bpi.de 2 Jan 2013 | 03:32 pm

Die vom Gemeinsamen Bundesausschuss (G-BA) in der Süddeutschen Zeitung angestoßene Debatte zu...

Quoted in Managed Care, March 2013 reimbursementintelligence.com 29 Mar 2013 | 12:35 am

Beware the Increasing Cost And Number of Orphan Drugs

Quoted in Managed Care, March 2013 reimbursementintelligence.com 29 Mar 2013 | 12:35 am

Beware the Increasing Cost And Number of Orphan Drugs

Europe Approves Ponatinib as Orphan Drug for Leukemias - cmlsupport.org.uk 3 Jul 2013 | 04:44 pm

Zosia Chustecka Jul 02, 2013 The European Commission has granted marketing authorization to ponatinib (Iclusig, Ariad Pharmaceuticals) as an orphan drug for use in certain leukemia patients who have...

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