Blogspot - my-darn-ms.blogspot.com - My MS Journey

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Physio, Pilates, Yoga, Swimming and Biking 18 Aug 2013 | 01:10 am

A very focused physio regime along with a specially-designed Pilates program seem to be slowly paying dividends with respect to strengthening some of my muscles that are very weak, particularily in my...

On the Cannabis 18 Aug 2013 | 01:05 am

I've started using a precribed synthetic cannabinoid called nabilone to try to help me with my chronic pain, particularily my sciatica.  I'm on the second week of a three-week ramp-up period for the d...

Cognitive Benchmark 10 Jul 2013 | 05:54 am

Today I got the results for the set of cognitive tests I took about a month ago. I passed (hehehe). In any case, comparing these results to the results of the same tests done 3 1/2 years ago (just bef...

Reply to anonymous prof 22 Jun 2013 | 04:46 am

From my perspective, CCSVI treatment is most likely to help if you are afflicted with balance, fatigue and autonomic function problems.  Whether it helps anything in terms of long-term disease progres...

The Importance of a Good Physiotherapist 20 Jun 2013 | 02:46 am

While the strength on the left side of my body has continued to deteriorate, I'm not giving up without a fight. Besides Pilates, yoga, swimming and biking, I've been seeing a new physiotherapist who s...

Letter to Atlantic Chapter of MSSC 31 May 2013 | 06:07 pm

Chris has put together a well-researched open letter to the head of the Atlantic chapter of the MS Society of Canada: http://goo.gl/5VZRU.  While I don't go out of my way to put down the MSSC, such as...

An interesting perspective from an angry MSer 24 May 2013 | 06:12 am

While not all true for all MSers (so what is?), this diatribe will describe some of the feelings that hit most of us at some time: http://mstruths.blogspot.ca/2011/03/things-you-probably-dont-know-abo...

National CCSVI Society 3 May 2013 | 03:18 am

Here is a useful, well-reasoned article that explains why it makes good sense to believe that CCSVI may be causing some of our MS symptoms: see this NCS presentation.  We do need more unbiased researc...

CCSVI Dead? Not by a long shot! 1 May 2013 | 11:04 pm

As usual, journalist Anne Kingston does a good job of putting the recent negative press CCSVI treatment has been getting into perspective: http://www2.macleans.ca/2013/05/01/ccsvi-dead-not-so-fast/.

Wouldn't it be wonderful...? 27 Apr 2013 | 09:00 am

If this therapy actually works, it could change everything for MSers... probably not in time to help people like me, but perhaps in time for the next generation: CCSVI Locator posting.

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