Npcfund - npcfund.org - Niemann-Pick Children's Fund, Inc
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2013 Hospital Hill Run Discount (40th Annual) 17 Feb 2013 | 09:00 pm
The Niemann-Pick Children’s Fund is proud to announce it’s participation in the 40th annual Hospital Hill Run in downtown Kansas City, Missouri as a Sliver Charity Partner! HHR has been giving local c...
Happy Holidays 29 Dec 2012 | 10:04 am
1 Show your support... Sign up to our newsletter for updates on NPC and other rare diseases! Sign Me Up! We hate spam just as much as you. It never tasted good. Show your support... Sign up to o...
2012 Niemann-Pick Disease Awareness Month 7 Oct 2012 | 09:23 am
Can you believe it….it is already October!?!? This year marks 20 years and counting of the NNPDF making strides in our rare disease community towards a common goal. We have to remain thankful for thos...
Road To Discovery 2012 – Greg Crawford 7 Oct 2012 | 08:56 am
Dean Greg Crawford is an amazing individual. If you asked if he felt amazing about what he does for the Niemann-Pick Community, he’d possibly beg to differ because of his humble attitude. Over this su...
Discount Deadline Update for Hospital Hill Run 18 May 2012 | 05:58 am
Hello everyone! Tomorrow will be the last day that the Niemann-Pick Children’s Fund can offer the 20% discount code for the 39th annual Price Chopper Hospital Hill Run. In preparation in ordering your...
20th Annual Family & Medical Conference 20 Mar 2012 | 11:42 am
This year is the National Niemann-Pick Disease Foundation’s 20th year of providing services to families affected by Niemann-Pick Disease, raising awareness, and the crucial part of funding for researc...
Rare Disease Day 2012 29 Feb 2012 | 05:44 pm
February 29, 2012 is National Rare Disease Day. Even on leap year, we can make this day a special day! What isn’t so RARE about rare disease is the fact that it affects all of us. Although that sounds...
Happy Valentines Day! 8 Feb 2012 | 11:45 am
Happy Valentines Day from the Niemann-Pick Children’s Fund! Each and every holiday whether that is Christmas or Valentines day, we ought to seek out and remember the basic principles of each of those...
2012 Hospital Hill Run (discount) 7 Feb 2012 | 01:36 pm
The 39th Annual Hospital Hill Run presented by Price Chopper is taking place on June 2, 2012 and the Niemann-Pick Children’s Fund has a great opportunity to help promote awareness of Rare Disease! We...
NIH Clinical Trial of Cyclodextrin Update 17 Dec 2011 | 06:36 pm
TRND (Therapies for Rare and Neglected Diseases) and the NIH team met with FDA representatives on December 13th to discuss the progressive plans to bring Cyclodextrin to a clinical trial in 2012. For ...
