Patientslikeme - blog.patientslikeme.com
General Information:
Latest News:
Quick poll- taking control of your health 27 Aug 2013 | 01:47 am
We’re curious about something: how are you taking charge of your health, and how is that changing conversations with your doctors? So, we thought we’d ask in a Quick Poll! Note: There is a poll embed...
PatientsLikeMe creates largest open registry of IPF patients in the world 22 Aug 2013 | 06:16 pm
Community One of Website’s Fastest Growing; Reveals Real-World Picture Of Daily Life With the Rare Lung Disease CAMBRIDGE, Mass.— August 22, 2013—In a few short months, PatientsLikeMe has created th...
“My new normal.” PatientsLikeMe member Jeff tells his personal journey with interstitial lung disease 20 Aug 2013 | 05:32 am
Have you met PatientsLikeMe member Jeff, also known as NinerFan? He has been living with interstitial lung disease (ILD) since 2004 and he recently took some time to share his journey with us. He spok...
PatientsLikeMe selects first pilot users for Open Research Exchange™ 13 Aug 2013 | 05:14 pm
Researchers and Patients to Test New Measures for Hypertension, Treatment Burden, Appetite and Diabetes, Primary Palliative Care CAMBRIDGE, Mass.— August 13, 2013—PatientsLikeMe has named the first f...
Raising awareness for psoriasis, all year long. 9 Aug 2013 | 10:32 pm
As many of you out there know, August is National Psoriasis Awareness Month, but it’s not the only time of year that you’re helping shine a spotlight on this chronic, autoimmune disease. This year, we...
Diabetes and stress- What the PatientsLikeMe diabetes community has to say 6 Aug 2013 | 07:07 pm
Here at PatientsLikeMe, we believe that sharing healthcare experiences is good. Why? Because when patients share real-world data, collaboration on a global scale becomes possible. So, we wanted to sha...
PatientsLikeMe co-founder Jamie Heywood named to PharmaVoice Top 100 5 Aug 2013 | 11:22 pm
An MIT-trained mechanical engineer, Jamie entered the field of translational medicine when his 29 year old brother Stephen was diagnosed with ALS, or Lou Gehrig’s Disease. Today Jamie is a chief scien...
“Don’t try to do this alone.” An interview with multiple sclerosis patient and PatientsLikeMe member Ted. 23 Jul 2013 | 08:55 pm
For our latest patient spotlight interview, we’re talking with Ted. Some of you may know him on PatientsLikeMe as sirsmedley’s and he’s been sharing his journey with the community since 2010. Ted was ...
Staying aware for UV Safety Month 17 Jul 2013 | 11:50 pm
It’s that time of year. We’re heading out on summer vacations, hitting the beaches and taking in some sun. But as we try to forget about all those work emails for an hour or two, we shouldn’t forget a...
“Does anyone in healthcare want to be understood?” Sally Okun from PatientsLikeMe at TEDMED2013 11 Jul 2013 | 02:00 am
It’s no secret that here at PatientsLikeMe, we think that the voice of the patient — your voice — is the number one way to drive medical advancements. At TEDMED 2013, our very own Sally Okun shared th...
