Worldpompe - worldpompe.org
General Information:
Latest News:
Slogan for the International Pompe Day 25 Aug 2013 | 05:00 am
I am excited to announce that we now have our OFFICIAL International Pompe Day Slogan! It was a tight race, but the winner is: Together We Are Strong! The next step will be choose our Logo! Stay tune...
Poll: Slogan for the International Pompe Day 18 Jul 2013 | 02:00 am
The First Annual International Pompe Day will be held on April 15, 2014. To make International Pompe Day a success, the IPA wants to include the International Pompe Community in organizing the event. ...
Poll: Slogan for the International Pompe Day 17 Jul 2013 | 05:00 am
The First Annual International Pompe Day will be held on April 15, 2014. To make International Pompe Day a success, the IPA wants to include the International Pompe Community in organizing the event. ...
International Pompe Day planned for 2014 25 Feb 2013 | 09:16 pm
The First Annual International Pompe Day will be held in 2014. To make International Pompe Day a success, the IPA wants to include the International Pompe Community in organizing the event. We are an ...
Pompe Survey 24 Feb 2013 | 05:00 am
Patients and parents contribute to the understanding of late-onset Pompe Disease. Find out more...
Pompe Connections 24 Feb 2013 | 05:00 am
Read the PompeConnections, an IPA brochure for patients with Pompe disease. In addition, a Treatment Edition provides resources on the treatment of Pompe Disease. The brochures are available in many l...
In Memoriam HELEN WALKER 3 Dec 2012 | 05:00 am
On the 30th November 2012, Helen Walker OAM (Member of the Order of Australia) passed away. Helen was board member of the International Pompe Association (IPA) and President of the Australian Pompe's ...
International Pompe Association 1 Jan 2000 | 12:00 pm
Campaign for early diagnosis and effective, affordable and safe therapies. Strive to provide information and support to all patients, their families and others with interests in Pompe disease. (IPA Mi...
