Spinabifidaconnection - spinabifidaconnection.com - Spina Bifida Connection Support Forum
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Tense Fontanelle? 26 Aug 2013 | 04:18 am
My son's soft spot feels tense, not bulging at all, just tense (he's 6 months old with a VP shunt) and honestly I don't know how long it has been this way. He doesn't go back to children's for a check...
Have anyone else's catheters changed recently? 25 Aug 2013 | 10:14 pm
Hello all! Just got our monthly delivery of Arthur's catheters, and found to our surprise that all the lubricating pouches had been attached to the outside of the packaging of each catheter, not the ...
PT-- joint compressions/ approximations? 25 Aug 2013 | 07:07 pm
Hi all, My 1 y/o little man is L3 sb and part of his therapy regimen at PT is an exercise called approximations, which is basically small repeated compressions of the lower joints.... I have been doi...
Anyone else need to login again and again? 22 Aug 2013 | 02:23 am
Most of the time, when I try to post what I have written in the forums, it tells me that I am not logged in. I selected for the computer to remember my login info, so it is (relatively) quick and eas...
Idea for website-opinions? 22 Aug 2013 | 12:16 am
I have this idea to make this website. Everything you wanted to know about people with disabilities but were afraid to ask. People can write questions they have and be anonymous. For example, someone ...
dose anyone here have a tattoos and where to. 21 Aug 2013 | 11:24 pm
I been thinking of getting my 2 legs tattooed where I cant feel them and I was just wondering if anyone on here as any tattoos.
anyone who does cone enemas that cant control bowels please help! 20 Aug 2013 | 11:46 am
im 19 and have spina bifida myelomeningocele and i do cone enemas every night and pretty much each time i have trouble keeping water in me and comes out as soon as it goes in.i cant control bowels so ...
website on SB 20 Aug 2013 | 05:43 am
I find it funny that it mentions that driving with SB is unlikely, yet directly above that statement, a woman with SB is shown getting in her car. There's a few bits of misinformation elsewhere on the...
New member from South Africa, my daughter has spina bifida Mylomenigociele 19 Aug 2013 | 01:56 pm
Hi Everyone,:19a: My name is Audrey, my Daughter Caren who is 16 now has spina bifida, she was recently diagnosed and treated for chiari malformation type one. She has had her shunt replaced once, sh...
Social Security RANT! 18 Aug 2013 | 07:46 pm
I was on SSI and SSDI for a number of years for being disabled. I have experienced over payments by the government by a few hundred dollars and have always paid it back because I could afford to pay i...
